Ruby Tuesday –which unfortunately closed in Ashburn, but has locations in Leesburg, South Riding and Fairfax Circle – has agreed to donate 20 percent of the proceeds on Friday to Angelman syndrome research as part of the 1st annual International Angelman Day.
Angelman syndrome is caused by a deletion or mutation on the 15th chromosome. It can be misdiagnosed or go undiagnosed in early stages. Children born with the rare genetic disorder are unable to speak and suffer motor difficulties as well as debilitating seizures. Despite the challenges they face, the children are also characterized by an eternally sunny disposition.
Sean Fennelly, of Ashburn, is one of the 24 children who were chosen to participate in the first clinical trial for the treatment of symptoms of Angelman syndrome.
"We made our final trip to Tampa last week,” said Sean’s mom, Ann Marie Fennelly. “It is such an exciting time for research, and we have never been more hopeful about Sean's future."
Visit cureangelman.org for more information.